About the Future Patient Blog

The Future Patient Blog is where you can find musings about the possibilities of patient-led and user-led healthcare by David Gilbert.

I am a former mental health service user with 30 years of experience as a patient and public engagement practitioner. I am also Patient Director, Sussex MSK Partnership (Central).

I believe that healthcare needs to change radically so that patients, carers, communities and citizens become partners for change.

Follow me on Twitter @DavidGilbert43

Find out more about the work I do at www.inhealthassociates.co.uk

I am also the author and developer of the Engagement Cycle that supports commissioners to undertake effective patient and public engagement http://www.engagementcycle.org

The posts you can find here are:

The Jewel Merchants – a parable for healthcare and what patients can bring

What’s Your Dog – Dealing with troubling times and how to avoid being ‘triggered’ by the events of 2016

A Few Poems from 2016 

A Touch On The Arm – returning to work after mental health problems

How To Be Unhappy – and managing your own self-expectations

The Makers of Bethlem – Words from the Victorian Asylum

If I Still Scream – Three Reasons Why Trumpism Hurts 

Let’s Talk About Power – Here Come The Patientistas

Once I Came This Way – Blog and Poems inspired by the Wellcome Collection’s ‘Beyond Bedlam’ exhibition

The Difficult Art Of Returning To Work After Mental Health Problems

Gazza’s Moment of Madness (And Mine) – a story that I hope helps a little to prevent more suicides

The Hedgehog – What Happens When Policy Making Is Driven By Fear (Also a critique of Secret Transformation Programmes… I mean ‘sustainable’)

Dear Friend – A Letter to Patient Leaders

Mr Robot – Musings On The Personal, Professional and The Political

Is It Worth It? Reflections After A Breakdown

Sometimes A Hill – Poems Written During Times Of Trouble

Say It: I Still Have Mental Health Problems
https://futurepatientblog.com/2016/07/19/say-it-i-still-have-mental-health-problems/

What If? Patients As Partners
https://futurepatientblog.com/2016/06/18/what-if-patients-as-partners-for-change/

Patient As Refugee https://futurepatientblog.com/2016/05/30/patient-as-refugee/

InThroughOut: Poems of Illness and Recovery
https://futurepatientblog.com/2016/05/29/inthroughout-poems-of-illness-and-recovery/

Stop Kicking The Cat – how patients can help change NHS Culture

The Imperfect Patient Director https://futurepatientblog.com/2016/05/15/my-imperfect-blog-how-to-be-a-good-enough-patient-director/

Blame It On The Wine – Daring to talk about the future of the NHS https://futurepatientblog.com/2015/12/04/blame-it-on-the-wine-daring-to-talk-about-the-future-of-the-nhs/

Junior Doctors and the Dishwasher Dispute https://futurepatientblog.com/2016/04/28/586/

Getting Serious: How a Patient Director can help focus the NHS on what matters to patients
https://futurepatientblog.com/2015/07/18/getting-serious-how-a-patient-director-can-help-focus-the-nhs-on-what-matters-to-patients/

Good Death. Bad Death: What my mum and dad’s deaths revealed about inequalities
https://futurepatientblog.com/2015/07/14/good-death-bad-death-notes-on-my-mum-and-dad/

So Good. So Good. So…: My psychiatric in-patient experience (in poetry)
https://futurepatientblog.com/2015/07/11/so-good-so-good-so-my-psychiatric-inpatient-experience/

Being Weird: The Plight of Patient Leaders
https://futurepatientblog.com/2015/07/04/being-weird-the-plight-of-patient-leaders/

The Letter: How a Patient Director can help integration
https://futurepatientblog.com/2015/06/24/integration-what-a-patient-director-could-do-to-help/

In Through Out – my mental health poetry journey
https://futurepatientblog.com/2015/06/14/in-through-out-my-mental-health-poetry-journey/

Being Valued: What I learned during my first week as a Patient Director
https://futurepatientblog.com/2015/06/09/being-valued-what-i-learned-during-my-first-week-as-a-patient-director/

The Patient’s Dozen – What Matters to Patients and Carers
https://futurepatientblog.com/2015/05/14/the-patients-dozen-what-matters-to-patients-and-carers/

Patient as Hero
https://futurepatientblog.com/2015/05/03/patient-as-hero/

Paying the Price: The Emotional Labour of Patient Leadership
https://futurepatientblog.com/2015/04/26/paying-the-price-the-emotional-labour-of-patient-leadership/

Seven Things that Patients Bring: The Benefits of Patients as Partners for Change https://futurepatientblog.com/2015/03/22/seven-things-that-patients-bring-the-benefits-of-patients-as-partners-for-change/

I Should Co-Co: time for patients to say no
https://futurepatientblog.com/2015/02/17/i-should-co-co-time-for-patients-to-say-no/

No More Eddies: Hitting suicide targets and missing the point?
https://futurepatientblog.com/2015/02/04/suicide-hitting-the-target-missing-the-point/

Beyond Us and Them: The role of patients in governance and improvement
https://futurepatientblog.com/2015/01/27/governance-or-improvement-the-two-roles-for-patients-as-partners/

The Engagement Industry: Lots of activity with little impact
https://futurepatientblog.com/2015/01/22/the-engagement-industry/

Just in Case: Patient-led solutions to A&E problems
https://futurepatientblog.com/2015/01/07/just-in-case-patient-led-solutions-to-the-ae-problem/

Poetry and Healthcare: The meeting of two worlds
https://futurepatientblog.com/2014/12/23/poetry-and-healthcare-bringing-my-worlds-together/

Patients as Pus: Why the process of discharge needs to change
https://futurepatientblog.com/2014/12/16/patients-as-pus-from-dis-charge-to-in-charge/

The Rep Trap: The Catch 22 of being a patient representative
https://futurepatientblog.com/2014/12/05/the-rep-trap/

We Are All Patients: Yes and no
https://futurepatientblog.com/2014/11/28/we-are-all-patients-yes-and-no/

Thank you Mandy et al: How small acts of kindness from non-clinical staff helped me recover from mental health problems
https://futurepatientblog.com/2014/11/04/thankyou-mandy-et-al-how-small-acts-of-kindness-from-non-clinical-staff-helped-me-recover-from-mental-health-problems/

Patients and Data: Changing roles and relationships
https://futurepatientblog.com/2014/10/26/patients-and-data-changing-roles-and-relationships/

No More Lazy Thinking: Let’s get clear on the benefits of patients as partners
https://futurepatientblog.com/2014/10/24/no-more-lazy-thinking-lets-get-clear-on-the-benefits-of-patients-being-partners-for-change/

Ideas from Patients: How patient-led innovation could work
https://futurepatientblog.com/2014/10/20/ideas-from-patients-how-patient-led-innovation-could-work/

The Future Patient: A manifesto for patient-led health and healthcare
https://futurepatientblog.com/2014/10/04/the-future-patient-a-picture-of-patient-led-health-and-healthcare/

If you go to futurepatientblog.com you can scroll down all articles.

2 thoughts on “About the Future Patient Blog

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