About the Future Patient Blog

The Future Patient Blog is where you can find musings about the possibilities of patient-led and user-led healthcare by David Gilbert.

I am a mental health service user with 30 years of experience as a patient and public engagement practitioner. I am also Patient Director, Sussex MSK Partnership (Central).

I believe that healthcare needs to change radically so that patients, carers, communities and citizens become partners for change.

Follow me on Twitter @DavidGilbert43

Find out more about the work I do at www.inhealthassociates.co.uk

I am also the author and developer of the Engagement Cycle that supports commissioners to undertake effective patient and public engagement http://www.engagementcycle.org

I am a poet and Writer In Residence at The Bethlem Gallery. My new collection of poems, ‘Elephants. Fragile.’ will be published in January 2018 by Cinnamon Press

The posts you can find here are:

Transitions – some more recent poetry about resilience

Hugs and Drugs – The limitations of ‘mental health awareness’

When My Words Went Elsewhere – true co-production across arts and health

Patient Leaders – what does that mean?

The Hope Frog – poems on resilience

The Broken Compass – personal reflections on control, meaning and choice in mental health 

FAQu – some answers that patient partners can use when they get asked the same old questions

The Road From Nowhere – How Patient And Carer Partners Are Changing Healthcare

What Matters Matters – How my psychiatrist got it right (after so many got it wrong)

Excluded From Power – a Guest Post by Renza Scibilia

Happy Birthday Me – Musings of a Two Year Old Patient Director

Three Poems For London

It’s About Time – why we need a ‘slow-health movement’

Let’s Talk About Death – breaking the taboos that surround suicide

For My Tired Friends – don’t give up!

Let’s (Not) Talk About Depression

Resilience – recent poetry

It’s Not All About You – why we need new stories about healthcare

You Who – an offering on ‘resilience’

Can I Ask A Question? The travails of a grumpy old git

The Forgotten – how non-clinical staff are the key to a better NHS

What’s Stopping You Appointing A Patient Director? An open letter to all healthcare organisations

Poetry In The Mean Time (poems during a dark period)

Like Listening For Glass – more poems written during troubled times

When Elephants Fight: Time for honest discussions (with patients and citizens) about the NHS

This Coldest Day – testimony for a kind soul (for Rosamund Snow)

The Jewel Merchants – a parable for healthcare and what patients can bring

What’s Your Dog – Dealing with troubling times and how to avoid being ‘triggered’ by the events of 2016

A Few Poems from 2016 

A Touch On The Arm – returning to work after mental health problems

How To Be Unhappy – and managing your own self-expectations

The Makers of Bethlem – Words from the Victorian Asylum

If I Still Scream – Three Reasons Why Trumpism Hurts 

Let’s Talk About Power – Here Come The Patientistas

Once I Came This Way – Blog and Poems inspired by the Wellcome Collection’s ‘Beyond Bedlam’ exhibition

The Difficult Art Of Returning To Work After Mental Health Problems

Gazza’s Moment of Madness (And Mine) – a story that I hope helps a little to prevent more suicides

The Hedgehog – What Happens When Policy Making Is Driven By Fear (Also a critique of Secret Transformation Programmes… I mean ‘sustainable’)

Dear Friend – A Letter to Patient Leaders

Mr Robot – Musings On The Personal, Professional and The Political

Is It Worth It? Reflections After A Breakdown

Sometimes A Hill – Poems Written During Times Of Trouble

Say It: I Still Have Mental Health Problems
https://futurepatientblog.com/2016/07/19/say-it-i-still-have-mental-health-problems/

What If? Patients As Partners
https://futurepatientblog.com/2016/06/18/what-if-patients-as-partners-for-change/

Patient As Refugee https://futurepatientblog.com/2016/05/30/patient-as-refugee/

InThroughOut: Poems of Illness and Recovery
https://futurepatientblog.com/2016/05/29/inthroughout-poems-of-illness-and-recovery/

Stop Kicking The Cat – how patients can help change NHS Culture

The Imperfect Patient Director https://futurepatientblog.com/2016/05/15/my-imperfect-blog-how-to-be-a-good-enough-patient-director/

Blame It On The Wine – Daring to talk about the future of the NHS https://futurepatientblog.com/2015/12/04/blame-it-on-the-wine-daring-to-talk-about-the-future-of-the-nhs/

Junior Doctors and the Dishwasher Dispute https://futurepatientblog.com/2016/04/28/586/

Getting Serious: How a Patient Director can help focus the NHS on what matters to patients
https://futurepatientblog.com/2015/07/18/getting-serious-how-a-patient-director-can-help-focus-the-nhs-on-what-matters-to-patients/

Good Death. Bad Death: What my mum and dad’s deaths revealed about inequalities
https://futurepatientblog.com/2015/07/14/good-death-bad-death-notes-on-my-mum-and-dad/

So Good. So Good. So…: My psychiatric in-patient experience (in poetry)
https://futurepatientblog.com/2015/07/11/so-good-so-good-so-my-psychiatric-inpatient-experience/

Being Weird: The Plight of Patient Leaders
https://futurepatientblog.com/2015/07/04/being-weird-the-plight-of-patient-leaders/

The Letter: How a Patient Director can help integration
https://futurepatientblog.com/2015/06/24/integration-what-a-patient-director-could-do-to-help/

In Through Out – my mental health poetry journey
https://futurepatientblog.com/2015/06/14/in-through-out-my-mental-health-poetry-journey/

Being Valued: What I learned during my first week as a Patient Director
https://futurepatientblog.com/2015/06/09/being-valued-what-i-learned-during-my-first-week-as-a-patient-director/

The Patient’s Dozen – What Matters to Patients and Carers
https://futurepatientblog.com/2015/05/14/the-patients-dozen-what-matters-to-patients-and-carers/

Patient as Hero
https://futurepatientblog.com/2015/05/03/patient-as-hero/

Paying the Price: The Emotional Labour of Patient Leadership
https://futurepatientblog.com/2015/04/26/paying-the-price-the-emotional-labour-of-patient-leadership/

Seven Things that Patients Bring: The Benefits of Patients as Partners for Change https://futurepatientblog.com/2015/03/22/seven-things-that-patients-bring-the-benefits-of-patients-as-partners-for-change/

I Should Co-Co: time for patients to say no
https://futurepatientblog.com/2015/02/17/i-should-co-co-time-for-patients-to-say-no/

No More Eddies: Hitting suicide targets and missing the point?
https://futurepatientblog.com/2015/02/04/suicide-hitting-the-target-missing-the-point/

Beyond Us and Them: The role of patients in governance and improvement
https://futurepatientblog.com/2015/01/27/governance-or-improvement-the-two-roles-for-patients-as-partners/

The Engagement Industry: Lots of activity with little impact
https://futurepatientblog.com/2015/01/22/the-engagement-industry/

Just in Case: Patient-led solutions to A&E problems
https://futurepatientblog.com/2015/01/07/just-in-case-patient-led-solutions-to-the-ae-problem/

Poetry and Healthcare: The meeting of two worlds
https://futurepatientblog.com/2014/12/23/poetry-and-healthcare-bringing-my-worlds-together/

Patients as Pus: Why the process of discharge needs to change
https://futurepatientblog.com/2014/12/16/patients-as-pus-from-dis-charge-to-in-charge/

The Rep Trap: The Catch 22 of being a patient representative
https://futurepatientblog.com/2014/12/05/the-rep-trap/

We Are All Patients: Yes and no
https://futurepatientblog.com/2014/11/28/we-are-all-patients-yes-and-no/

Thank you Mandy et al: How small acts of kindness from non-clinical staff helped me recover from mental health problems
https://futurepatientblog.com/2014/11/04/thankyou-mandy-et-al-how-small-acts-of-kindness-from-non-clinical-staff-helped-me-recover-from-mental-health-problems/

Patients and Data: Changing roles and relationships
https://futurepatientblog.com/2014/10/26/patients-and-data-changing-roles-and-relationships/

No More Lazy Thinking: Let’s get clear on the benefits of patients as partners
https://futurepatientblog.com/2014/10/24/no-more-lazy-thinking-lets-get-clear-on-the-benefits-of-patients-being-partners-for-change/

Ideas from Patients: How patient-led innovation could work
https://futurepatientblog.com/2014/10/20/ideas-from-patients-how-patient-led-innovation-could-work/

The Future Patient: A manifesto for patient-led health and healthcare
https://futurepatientblog.com/2014/10/04/the-future-patient-a-picture-of-patient-led-health-and-healthcare/

If you go to futurepatientblog.com you can scroll down all articles.

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